Death
and dying are things that are unavoidable when working at a nursing home. While
death is a normal process of life, it is something that is very uncomfortable
for people to talk about. By treating
death as a taboo topic, we don’t allow ourselves to make peace with the end of
our lives. This cheats individuals of the
opportunity to make plans at the end of their life and to have an open dialogue
with family members about end of life plans.
A term that is used by
researchers is “good death”. Now the
term good death may be confusing because normally when thinking about death we
only think about sadness. The term good death refers to when a person is not
only kept free of pain but retains a high measure of control, autonomy and independence
over his or her fate (Scarre, 2012). He or she retains the ultimate say over
what treatments should be administered, and when those treatments should stop
(Scarre, 2012). A dying person should be enabled, wherever possible, to make
her final dispositions as she wishes, and attain a state of bodily and mental
peace (Scarre, 2012). Maple Crest does a good job of giving residents a voice
by allowing them to have a say so in their treatment plans (if they are cognitively
fit) and in the daily activities that they participate in.
At St. Joseph’s Hospital Health Center in Syracuse, New
York, they have instituted a program called “Seeds of Hope”
(Kowal, 2013). This
program was instituted by a nurse named Susan Baum who through her own personal
experience of losing a loved one and the culminating professional experiences
of witnessing numerous natural and imminent deaths of critical care patients
throughout her career (Susan Baum, 2014). As a part of this, program patients
receive handmade blankets from the hospital volunteer group. Family and friends honor their passing loved
one by personally making handprints of them that are laid over poetry created
by the staff. All families receive
Forget-Me-Not seeds that are packaged with an appropriate poem or prayer. Along with the handprints, some families have
asked for locks of hair and ventilator water (representing the last breath of
their loved one). Families stay and
reminisce around their loved one while sharing a meal or conversation. Every family receives a bereavement guide as
well as personal mailings from staff-of words of encouragement and counsel-for
up to one year after their loved ones passing (Susan Baum, 2014).
Maple
Crest also addresses the needs of the family members of their residents by
providing them with them with “Care Notes”. Care Notes cover a variety of
topics such as getting through the first week after the funeral, grieving the
loss of your parent, sources of strength after the death of a spouse and using
good memories to help heal grief among other topics. Through care notes, family
members are able to prepare themselves for the death of their loved ones and
how to deal with some of the emotions that come with death process. Care notes also help family members realize that
the feelings that they are feeling are normal after the loss of someone that
they loved and cared deeply about.
References
Kowal, C. (2013) Helping your patient's family
deal with death. Retrieved from http://www.nursetogether.com/helping-patients-family-deal-with-death
Scarre, G. (2012). Can there be a good death? Journal of Evaluation In Clinical
Practice, 18(5),
1082-1086. doi:10.1111/j.1365-2753.2012.01922.x
Susan Baum (2014) Retrieved from http://daisyfoundation.org/daisy-award/daisy-nurses/2011/10/baum_susan
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